What’s in it for me?

A Researcher’s Perspective

A clear need for change in research:

‘The clinical trials enterprise has gone awry,’ he said. ‘It’s become unnecessarily expensive, cumbersome and arcane,’ he said. ‘It’s inarguable that the system has become so costly and onerous that most of the important questions go unasked.’ Because clinical trials fail to generate needed answers, investigators try alternative approaches to collecting data, sometimes ‘out of desperation.’
— -Dr. Robert Califf, Forbes Interview 6/28/2017

Necessity of More Data

Researchers are, simply put, looking for more real world data. In the past, researchers have been able to work independently in silos with data that came from health systems and academic research institutes. With newly-found cooperation from patients and their families along with clinicians who understand models where “crowd-sourced” data can be harmonized with a great deal of clinical detail still in the record, it is very realistic to synchronize the data with a team of researchers. Needless to say, much more can be accomplished, much faster, and at a lower cost.

Additional demand is emerging directly from the pharmaceutical, device and bio-technology industries. These companies are seeking faster startup of trials, greater patient/clinician engagement, and “real world” data for pre- and post-market studies. Learning Health Networks provide a novel research platform. These studies may be proprietary to a specific drug or population and not suitable for an open network. The same companies are also emerging as a funding source for network resources across domains. With engaged patient communities and activated clinicians willing to work with researchers, is there still a need for the legacy CRO model?  

More Efficient Value Extraction


The Hive Networks Difference

1. Continuous Care Improvements with Condition Focus

If Electronic Health Record solutions (EHRs) are “Patient Centric” then Hive Networks is “Condition-Focused.” If EHRs document care and outcomes, Hive Networks develops and promulgates continuous care improvements and can “set the standard in outcomes.” Hive Networks supports researchers who advance those standards.  It serves to spotlight superior outcomes to drive improvements by care teams, patients and families. It helps payers reward achieving those standards.

2. Better Data via Better Compliance (WIIFM)

Behind the success of engaged communities is a strong “what’s in it for me” for every stakeholder in the Hive Networks’ universe. Care teams can see improved results and better patient compliance when they are plugged in to the latest research and their patients are engaged with reporting regular feedback. Patients and their families become passionately engaged when they expand beyond “fund raising to support a cure” to also “becoming part of building the solution.” Researchers gain better data, more real-world feedback and satisfaction of quicker uptake on the adoption of research successes.